At the centre of the HIV/AIDS response are the 12 million people who need care and treatment. Those who are ill require support from carers who provide physical, social and psychological support. Yet these carers – essential actors in the response – are often invisible to the system that relies on them. The writers argue that focusing on the carer, at the household level, directs assistance where it is most effective and most needed, will respect human rights, and will help achieve the millennium development goals in health.
About the authors
Acknowledgements
Acronyms and abbreviations
Foreword
1. Introduction
2. Dignity in Daily Life: A Conceptual Framework
3. The Conditions of Choice: Capability Servitude in Unpaid HIV Care
4. Stigma and Discrimination: The Situation of People Living with HIV and Their Carers
5. The Duty of Care: The Right to Health in Hospital Settings
6. HIV and Gender-based Violence: The Rights of Unpaid Women and Girl Carers
7. A Case for Justice: The Rights of Prisoners with HIV
8. Dignity Overdue: National HIV Strategies and Unpaid Carers' Rights
References and bibliography
Annex: Methodology
Professor Marilyn Waring is a feminist economist and public policy expert specialising in the economics of unpaid work.
Dr Robert Carr was a sociologist specialising in HIV, marginalisation, and the politics of social exclusion.
Dr Anit Mukherjee is a health economist focusing on the economics of development, HIV and national policy.
Dr Meena Shivdas is a gender and development expert focusing on women's rights, HIV, culture and the law.