Ethical Issues in Community-Based Research with Children and Youth

Preface

Acknowledgments

Contributors

Part I: The Ecology of Informed Consent in Vulnerable Child and Youth Populations and First Nations

1. Community-Based Research with Vulnerable Populations: Challenges for Ethics and Research Guidelines BONNIE LEADBEATER, TED RIECKEN, CECILIA BENOIT, ELIZABETH BANISTER, CONRAD BRUNK, and KATHLEEN GLASS
2. Through the Community Looking Glass: Participant Consultation for Adolescent Risk Research 22
   CELIA FISHER and JESSICA MASTY
3. At the Edge of Consent: Participatory Research with Student Filmmakers
   TED RIECKEN and TERESA STRONG-WILSON

Part II: Longitudinal Samples: Protecting Privacy and Maintaining Consent

4. A Youth Population Health Survey
   MIKAEL JANSSON, WAYNE MITIC, TRACEY HULTEN, and MANDEEP DHAMI
5. The Ethics of Peeking behind the Fence: Issues Related to Studying Children’s Aggression and Victimization
   AMY YUILE, DEBRA PEPLER, WENDY CRAIG, and JENNIFER CONNOLLY

Part III: Weighing Benefits and Preventing Harms

6. The Ecstasy and the Agony of Collecting Sociometric Data in Public School Classrooms: Challenges, Community Concerns, and Pragmatic Solutions
   MARION K. UNDERWOOD, LARA MAYEUX, SCOTT RISSER, and BRIDGETTE HARPER
7. Ivory Tower Ethics: Potential Conflict between Community Organizations and Agents of the Tri-council
   LORRIE SIPPOLA

Part IV: The Special Case of Research with Groups

8. Youth on the Margins: Qualitative Research with Adolescent Groups
   ANNE MARSHALL and BLYTHE SHEPARD
9. Walking a Fine Line: Negotiating Dual Roles in a Study with Adolescent Girls
   ELIZABETH BANISTER and KIM DALY

Part V: Child Protection Issues in Research with Vulnerable Children and Youth

10. Respect and Protect? Conducting Community–Academic Research with Street-Involved Youth
    MIKAEL JANSSON and CECILIA BENOIT
11. Conducting Research in Child Maltreatment: Problems and Prospects
    CHRISTINE WALSH and HARRIET MACMILLAN
12. The Study of Suicidality among Children and Youth: Preliminary Recommendations and Best Practices
    TRACY VAILLANCOURT and VIOLETTA IGNESKI

Part VI: Summary and Recommendations for Ethical Guidelines, Research, and Training

13. Unique Roles, Unique Challenges: Graduate Students’ Involvement in Community–Academic Research
    JOSH SLATKOFF, RACHEL PHILLIPS, SARAH CORRIN, TAMARA ROZECK-ALLEN, and TERESA STRONG-WILSON
14. Stepping into Community-Based Research: Preparing Students to Meet New Ethics and Professional Challenges
    MARLENE MORETTI, BONNIE LEADBEATER, and ANNE MARSHALL
15. Including Vulnerable Populations in Community-Based Research: New Directions for Ethics Guidelines and Ethics Research
    BONNIE LEADBEATER and KATHLEEN GLASS